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    • Welcome 2026!!! MIHRA’s 2nd Year Community Letter!
    • Vision & Mission
    • MIHRA Leadership Teams
    • Our Partners and Networks
    • Get Involved in MIHRA’s Mission!
    • Contact Us
    • All Research
    • MIHRA Patient Contact Registry!
    • MIHRA Bio Data Harmonization Core
    • MIHRA Clinical Trial Sites Network (CTSN)
    • MIHRA Scientific Working Groups (SWGs)
    • MIHRA Publications
    • All Resources
    • GCOM 2026 Patient Toolkit
    • MIHRA Myositis University
    • MIHRA Current Clinical Studies (CCS) Listings
    • MIHRA IIM Specialty Clinics (ISC) Directory
    • MIHRA Seminars in Myositis Diseases
    • MIHRA Community Membership
    • Corporate Sponsorship Circles
    • MIHRA Career Enhancement Core Programming (CEP)
      • Message from MIHRA Leadership to Welcome 2026!
      • FDA Launches Myositis Clinical Trial Partnership with the MIHRA Foundation
      • Rare Disease Day 2026!!!
      • The Ballad of ‘Myositis Joe’
      • MIHRA Community Stories … 🌸The Heavy Lifters🌸
      • MIHRA Community Stories… Exercise
  • Newsletter
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Rare Disease Day 2026!!!
Learn More about Rare Disease Day 2026!!!
Join MIHRA at the American College of Rheumatology!!!
Learn More about Join MIHRA at the American College of Rheumatology!!!
FDA Launches Myositis Clinical Trial Partnership with the MIHRA Foundation
Learn More about FDA Launches Myositis Clinical Trial Partnership with the MIHRA Foundation
MIHRA Community Stories … 🌸The Heavy Lifters🌸
Learn More about MIHRA Community Stories … 🌸The Heavy Lifters🌸
Message from MIHRA Leadership to Welcome 2025!
Learn More about Message from MIHRA Leadership to Welcome 2025!
MIHRA Bio-Specimen Sub-Core
Learn More about MIHRA Bio-Specimen Sub-Core
MIHRA CTSN CAR-T Trials Community Forum
Learn More about MIHRA CTSN CAR-T Trials Community Forum
MIHRA Write On!
Learn More about MIHRA Write On!
MIHRA Global Case Conference
Learn More about MIHRA Global Case Conference
MIHRA Journal Club
Learn More about MIHRA Journal Club

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Since connecting with MIHRA, significant opportunities and advancements occurred in my academic and clinical life. The collaboration and support provided by the MIHRA family have been instrumental in fostering my professional growth and enhancing my research capabilities.

Fulden Sari, PhD, Physiotherapist
Assistant Professor, Bingol University, Turkey

MIHRA promises great transformations for patients and researchers alike. It is a model for bringing together organizations and individuals to meet the needs for caring and curing myositis.

Ingrid de Groot
Pediatric Social Worker, International Myositis Advocate, Patient Researcher, International Peer Leader, Patient Advisor
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This web-site is for educational and informational purposes only, and does not substitute for professional medical advice or services which should be sought from one's own clinician who understands one's individual case. No clinician-patient relationship is created by this web site or its use. The MIHRA Foundation or any affiliated entities or organizations are not liable for consequences with using this web-site. Never delay seeking care because of information presented on this web-site.

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