Quarterly online scientific seminars on state of the art developments on pivotal topics in myositis related diseases. MIHRA Scientific Seminars are tailored for those with a dedicated interest in the care and research of myositis diseases.
Seminars are open to the public and welcome patients and their loved ones in attendance. Panel discussions are geared toward further discovery and shared insight through attendee exchange.
See below for links to upcoming seminars and recordings archive.
Upcoming Seminars!
Inclusion Body Myositis: Research, Care & Living with IBM
Wednesday 26 March 2025 at 3pm EST, 12pm PST, 8pm UK, 9pm CET, 1:30am Mumbai, 5am Hong Kong, 7am Melbourne
This scientific seminar will be of 2 hour duration
PROGRAMME CONTENT
Scientific Developments in IBM
Major Concepts of Trial Design in IBM
Imaging in IBM
Exercise & Rehabilitation Concepts in IBM
Functional Aspects of Living with IBM (Swallowing, Bladder Function, Mobility, Hand use, etc.)
Psychological Health / How Providers can Support Patient & Family Resilience
PROGRAMME FACULTY
Elie Naddaf Merilee Needham Mazen Dimachkie Helene Alexanderson
Joe Sanchez (Patient Partner, USA) Pedro Machado
Ashley Danby Malin Regardt Baskar Roy Nameta Goyal Nicole Voet James Lilliker
Marianne de Visser Roland Mischke (Patient Partner, Germany)
Seminars are cost-free and open to the public
Click here to register for this seminar
MIHRA Seminars in Myositis Diseases Recording Archives!
Click here for the Recording Archive (after the inaugural one! 🙂