Research

Quarterly online scientific seminars on state of the art developments on pivotal topics in myositis related diseases. MIHRA Scientific Seminars are tailored for those with a dedicated interest in the care and research of myositis diseases. Seminars are open to the public and welcome patients and their loved ones in attendance. Panel discussions are geared…

MIHRA CTSN is a program of alliance, fortification and education for global clinical trial readiness in IIMs. MIHRA CTSN coheres and implements strategies to ensure that the global clinical trials community is the best it can be, and therefore, also the clinical trial design and implementation.

The MIHRA Bio-Data Harmonization Core addresses the essential need for global pooling of biological and case information in rare diseases in order to elucidate critical patterns of disease typing, diagnosis, severity, complications, and potential treatments. MIHRA Bio-Data Harmonization Core is a proactively involved in MIHRA’s public private partnership (PPP) research efforts to ensure sound clinical…

The MIHRA SWGs often collaborate with each other and the MIHRA Cores to investigate specific areas of IIM research to answer critical questions in IIMs.

The MIHRA Community is committed to highly collaborative research. MIHRA teams publish their efforts as timely as possible in order to advance patient care, clinical trial readiness & rare disease knowledge. Collaborative research in myositis-related disorders: MIHRA, a global shared community model Mental Health in pediatric & adult myositis-related diseases: current state of research, interventions,…