Myositis-Related Conditions are: Rare Diseases, Challenging for Living, Challenging For Research

MIHRA community works to represent the wide spectrum of myositis diseases in research & care

  • MIHRA Current Clinical Studies Listings

    Bridging patients with appropriate current studies is critical for rare disease research. The MIHRA Current Clinical Studies listing provides an easy to find easy to read listing of updated studies in IIM diseases. This resource also provides an overview of the IIM research landscape for researchers, hopefully encouraging collaboration.

  • MIHRA IIM Specialty Clinics

    IIMs are rare and challenging to treat. MIHRA IIM Specialty Clinics is a program that helps build expertise in IIM through clinician community engagement and for patients and families to find IIM specialists.

  • MIHRA Myositis University

    A patient voiced priority has been the need for high-level education in IIMs for their clinicians. MIHRA Myositis University provides cost-free cross-specialty, cross-disciplinary accredited education.

  • MIHRA Clinical Trial Sites Network

    MIHRA CTSN is a program of alliance, fortification and education for global clinical trial readiness in IIMs. MIHRA CTSN coheres and implements strategies to ensure that the global clinical trials community is the best it can be, and therefore, also the clinical trial design and implementation.