Myositis-Related Conditions are: Rare Diseases, Challenging for Living, Challenging For Research
MIHRA community works to represent the wide spectrum of myositis diseases in research & care
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MIHRA Current Clinical Studies Listings
Bridging patients with appropriate current studies is critical for rare disease research. The MIHRA Current Clinical Studies listing provides an easy to find easy to read listing of updated studies in IIM diseases. This resource also provides an overview of the IIM research landscape for researchers, hopefully encouraging collaboration.
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MIHRA IIM Specialty Clinics -In Progress
IIMs are rare and challenging to treat. MIHRA IIM Specialty Clinics is a program that helps build expertise in IIM through clinician community engagement and for patients and families to find IIM specialists.
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MIHRA Myositis University
A patient voiced priority has been the need for high-level education in IIMs for their clinicians. MIHRA Myositis University provides cost-free cross-specialty, cross-disciplinary accredited education.
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MIHRA Clinical Trial Sites Network – In Progress
MIHRA CTSN is a program of alliance, fortification and education for global clinical trial readiness in IIMs. MIHRA CTSN coheres and implements strategies to ensure that the global clinical trials community is the best it can be, and therefore, also the clinical trial design and implementation.
Community
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News
MIHRA is humbled to announce the Dr. Paul H. Plotz Endowment for Global Education, Research Acceleration & Career Enhancement in Myositis
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Events
Join Us at GCOM 2024!
Friday Evening 15 March 2024 – doors open at 6pm .. come say hello to the residents at Pittsburgh’s National Aviary! MIHRA and iMyoS: Celebrating 25 Years of International Collaborative Research in Myositis!
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Stories
The Ballad of ‘Myositis Joe’
Joe Sanchez is well known to the myositis community with his gentle inspiration helping others to stay engaged