Myositis-Related Conditions are: Rare Diseases, Challenging for Living, Challenging For Research
MIHRA community works to represent the wide spectrum of myositis diseases in research & care
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MIHRA Seminars in Myositis Diseases
Quarterly online scientific seminars on state of the art developments on pivotal topics in myositis related diseases. MIHRA Scientific Seminars are tailored for those with a dedicated interest in the care and research of myositis diseases. Seminars are open to the public and welcome patients and their loved ones in attendance. Panel discussions are geared…
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MIHRA Current Clinical Studies (CCS) Listings
Bridging patients with appropriate current studies is critical for rare disease research. The MIHRA Current Clinical Studies listing provides an easy to find easy to read listing of updated studies in IIM diseases. This resource also provides an overview of the IIM research landscape for researchers, hopefully encouraging collaboration.
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MIHRA IIM Specialty Clinics (ISC) Directory
IIMs are rare and challenging to treat. MIHRA IIM Specialty Clinics is a program that helps build expertise in IIM through clinician community engagement and for patients and families to find IIM specialists.
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MIHRA Myositis University
A patient voiced priority has been the need for high-level education in IIMs for their clinicians. MIHRA Myositis University provides cost-free cross-specialty, cross-disciplinary accredited education.
Community
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News
MIHRA CTSN CAR-T Trials Community Forum
Within one year of MIHRA’s incorporation as a 501c3 non-profit charitable research organization, the MIHRA Clinical Trial Sites Network (CTSN) Advisory Team announced the 1st CTSN Community Forum to occur on 14 December 2024. This was in response to pressing communications from predominantly earlier investigators regarding differentiating benefits between CAR-T / CAR-NK trial selection, logistics…
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Events
Registration for March 2025 – MIHRA Seminars in Myositis Diseases
Inclusion Body Myositis: Research, Care & Living with IBM Wednesday 26 March 2025 at 3pm EST, 12pm PST, 8pm UK, 9pm CET, 1:30am Mumbai, 5am Hong Kong, 7am Melbourne, Australia This scientific seminar will be of 2 hour duration PROGRAMME CONTENT Scientific Developments in IBM Major Concepts of Trial Design in IBM Imaging in IBM…
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Stories
The Ballad of ‘Myositis Joe’
Joe Sanchez is well known to the myositis community with his gentle inspiration helping others to stay engaged