The MIHRA Community is committed to highly collaborative research. MIHRA teams publish their efforts as timely as possible in order to advance patient care, clinical trial readiness & rare disease knowledge.
Collaborative research in myositis-related disorders: MIHRA, a global shared community model
Mental Health in pediatric & adult myositis-related diseases: current state of research, interventions, & future steps from the MIHRA Psychological Impact Scientific Working Group. This work will next be presented at EULAR 2025 in Barcelona.
Self-reported physical activity & fatigue & its association to anxiety & depression in adult patients with idiopathic inflammatory myopathies: a MIHRA Psychological Impact & MIHRA Exercise & Rehabilitation Scientific Working Groups collaboration. This work will next be presented at EULAR 2025 in Barcelona.
MIHRA Clinical Trial Readiness Core: Response in addressing the critical climate of current trials in myositis-related diseases
MIHRA Psychological Impact, Exercise & Rehabilitation, Cardiac & Pulmonary Scientific Working Groups: Basic concepts in preserving holistic well-being in ILD: a MIHRA & G-FoRSS collaborative summary. This work will be presented next at Hospital for Special Surgery Special Symposium on Myositis August 2025.
MIHRA Clinical Trial Readiness Core: Clinical endpoints in myositis: challenges and ways forward
MIHRA Exercise and Rehabilitation Scientific Working Group: Useability & Feasibility Trial of the Carbonhand Glove in People with IIMs & Impaired Hand Function. Will be presented next at the Paralyzed Veteran’s Association August 2025.
MIHRA Clinical Trial Readiness Core & MIHRA Skin Focused Scientific Working Group: Updates in Dermatomyositis: Newer Treatment Options & Outcome Measures from Dermatologic Perspectives
MIHRA Mitochondria Scientific Working Group: Mitochondrial transfer and implications for muscle function in idiopathic inflammatory myopathies
MIHRA Calcinosis Scientific Working Group: Moving forward together: collaborative landscapes of research in idiopathic inflammatory myopathies & calcinosis
MIHRA Exercise & Rehabilitation Scientific Working Group: High-Intensity Interval Training Outperforms Moderate Exercise to Improve Aerobic Capacity in Patients with Recent Onset IIMs
MIHRA Imaging Scientific Working Group: Current approach to muscle imaging in myositis
MIHRA Clinical Trial Readiness Core: Current myositis clinical trials & tribulations