MIHRA Publications

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The MIHRA Community is committed to highly collaborative research. MIHRA teams publish their efforts as timely as possible in order to advance patient care, clinical trial readiness & rare disease knowledge.

CER – MIHRA Special Article March 2024Download

Collaborative research in myositis-related disorders: MIHRA, a global shared community model

MIHRA Psychological Impact – Lanis 2024Download

Mental Health in pediatric & adult myositis-related diseases: current state of research, interventions, & future steps from the MIHRA Psychological Impact Scientific Working Group. This work will next be presented at EULAR 2025 in Barcelona.

Self-reported physical activity and fatigues and associations to anxiety and depression in adult IIMDownload

Self-reported physical activity & fatigue & its association to anxiety & depression in adult patients with idiopathic inflammatory myopathies: a MIHRA Psychological Impact & MIHRA Exercise & Rehabilitation Scientific Working Groups collaboration. This work will next be presented at EULAR 2025 in Barcelona.

ard-2024-Response TrialsDownload

MIHRA Clinical Trial Readiness Core: Response in addressing the critical climate of current trials in myositis-related diseases

JPRM – Frailty Concepts in ILDDownload

MIHRA Psychological Impact, Exercise & Rehabilitation, Cardiac & Pulmonary Scientific Working Groups: Basic concepts in preserving holistic well-being in ILD: a MIHRA & G-FoRSS collaborative summary. This work will be presented next at Hospital for Special Surgery Special Symposium on Myositis August 2025.

Clinical endpoints in myositis_ challenges and ways forwardDownload

MIHRA Clinical Trial Readiness Core: Clinical endpoints in myositis: challenges and ways forward

Carbon Hand ACR 2024 Results PresentationDownload

MIHRA Exercise and Rehabilitation Scientific Working Group: Useability & Feasibility Trial of the Carbonhand Glove in People with IIMs & Impaired Hand Function. Will be presented next at the Paralyzed Veteran’s Association August 2025.

Skin Muscle Measures in Treatment ResponseDownload

MIHRA Clinical Trial Readiness Core & MIHRA Skin Focused Scientific Working Group: Updates in Dermatomyositis: Newer Treatment Options & Outcome Measures from Dermatologic Perspectives

Mitochondrial transferDownload

MIHRA Mitochondria Scientific Working Group: Mitochondrial transfer and implications for muscle function in idiopathic inflammatory myopathies

MIHRA calcinoisis ways forwardDownload

MIHRA Calcinosis Scientific Working Group: Moving forward together: collaborative landscapes of research in idiopathic inflammatory myopathies & calcinosis

HIIT – AndreasonDownload

MIHRA Exercise & Rehabilitation Scientific Working Group: High-Intensity Interval Training Outperforms Moderate Exercise to Improve Aerobic Capacity in Patients with Recent Onset IIMs

Current approach to muscle imaging in myositisDownload

MIHRA Imaging Scientific Working Group: Current approach to muscle imaging in myositis

Trials TribulationsDownload

MIHRA Clinical Trial Readiness Core: Current myositis clinical trials & tribulations

In Press:

From Seeding to Flourishing: Establishing a Rare Disease Clinic with a Focus on Myositis Diseases – A primer from the MIHRA Career Enhancement Program. Parihar J, Shah M, Saketkoo LA, Gupta L.

Let’s talk about pain, the new important domain to assess and address in adult myositis – A qualitative study. A MIHRA psychological impact and MIHRA exercise and rehabilitation scientific working groups collaboration. Petterson H, Regardt M, Tasarrofi M, Alexanderson H.