Quarterly online scientific seminars on state of the art developments on pivotal topics in myositis related diseases. MIHRA Scientific Seminars are tailored for those with a dedicated interest in the care and research of myositis diseases.
Seminars are open to the public and welcome patients and their loved ones in attendance. Panel discussions are geared toward further discovery and shared insight through attendee exchange.
See below for links to upcoming seminars and recordings archive.
Upcoming Seminars!
Cardiovascular Complexities in Myositis Diseases
Date TBD
Skin Involvement: Diagnosis, Care & Complications across Skin Types in Myositis Diseases
Date TBD
Seminars are cost-free and open to the public
MIHRA Seminars in Myositis Diseases Recording Archives!
26 March 2025 Seminar: Research, Care & Living with IBM
I. Introduction: Faculty Chairs. Elie Naddaf & Lesley Ann Saketkoo
II. Patient Voice: Speaker: Marie -Christine Breeveld, Patient Research Partner Netherlands
III. Patho-Mechanisms in IBM – Moderator: Floranne Ernste, Rheumatology Mayo Clinic-USA a) Overview of IBM Patho-Mechanisms: Elie Naddaf, Neurology Mayo Clinic-USA b) Mitochondria and inflammation in IBM: Jorge Chapas, Immunology, University of Washington-USA
IV. The Clinical Trial Landscape in IBM – Moderator: Merrilee Needham a) Current and Upcoming Clinical Trials in IBM: Mazen Dimachkie, Neurology Kansas University-USA b) Outcome Measures in IBM: Marianne De Visser, Neurology Amsterdam UMC-Netherlands c) Challenges in IBM Clinical Trials: Merrilee Needham, Neurology Perron Institute-Australia
V. The Use of Imaging in IBM – Moderator: Bing Liao, Neurology Houston Methodist-USA a) MRI in IBM: Pedro Machado, Neuro-Rheumatology University College London-UK b) Ultrasound in IBM: Myma Albayda, Rheumatology Johns Hopkins University USA
VI. Exercise & Rehabilitation Concepts in IBM Moderators: Helene Alexanderson, Physiotherapist, Karolinska Institutet-Sweden & Joe Sanchez, Patient Partner, Texas-USA a. Exercise in IBM: Ashley Dalby, Exercise Physiologist, UT Tyler Texas-USA b) Hand Function in IBM: Malin Regardt, Occupational Therapist, Karolinska Institutet-Sweden
VII. Living with IBM: Functional Aspects & Psychological Well-Being Moderators: Roland Mischke, Patient Partner-Germany & Matteo Lucchini, Neurologist, Universita’ Cattolica del Sacro Cuore-Italy a) Swallowing in IBM: Kendrea Garand, Speech & Language Pathologist, University of Pittsburgh-USA b) Bladder Function in IBM: Genevieve Simcovic, Internal Medicine Trainee, Fiona Stanley Hospital-Australia c) IBM Patient Priorities in Health & Research: Ingrid de Groot, Social Worker, Psychology, Patient Research Partner-Netherlands d) Psychological Health & Well-Being when Living with IBM: Christopher Graham, Clinical Psychologist University of Strathclyde Scotland-UK