Registration for March 2025 – MIHRA Seminars in Myositis Diseases

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Inclusion Body Myositis: Research, Care & Living with IBM

Wednesday 26 March 2025 at 3pm EST, 12pm PST, 8pm UK, 9pm CET, 1:30am Mumbai, 5am Hong Kong, 7am Melbourne, Australia

This scientific seminar will be of 2 hour duration

PROGRAMME CONTENT

Scientific Developments in IBM

Major Concepts of Trial Design in IBM

Imaging in IBM

Exercise & Rehabilitation Concepts in IBM

Functional Aspects of Living with IBM (Swallowing, Bladder Function, Mobility, Hand use, etc.)

Psychological Health / How Providers can Support Patient & Family Resilience

PROGRAMME FACULTY

Elie Naddaf Merilee Needham Mazen Dimachkie Helene Alexanderson
Joe Sanchez (Patient Partner, USA) Pedro Machado

Ashley Danby Malin Regardt Baskar Roy Nameta Goyal Nicole Voet James Lilliker

Marianne de Visser Roland Mischke (Patient Partner, Germany)

Registration for March 2025 MIHRA Seminars in Myositis Diseases: Inclusion Body Myositis: Research, Care & Living with IBM

Registration – MIHRA Seminars in Myositis Diseases Form – March 2025 – IBM

This form is to register for MIHRA’s Scientific Seminar on Inclusion Body Myositis: Research, Care & Living with IBM

Welcome!! Please remember to click 'SUBMIT" at the end of this form. A couple weeks prior to the event we will send you a meeting link! But you can reach to the MIHRA team with any questions. This seminar will be recorded and the recording will be posted for public viewing.

Contact Details

Name(Required)
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Please tell us where you work or reside:
Please tell us about you: (please select all that apply)
Would you be willing to record a 30 to 60 second video with Zoom clips regarding the major concerns (or major need areas) you have about IBM care & research? This would be played, along with other clips from community members, at the beginning of the seminar.

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